Me hiking in NC. I was healthier here. Healthier, but still in pain. My name is Sarabeth and I suffer from chronic nerve pain.
At the age of twelve, I needed TWO major surgeries to correct severe scoliosis.
A titanium device called a Harrington Rod was inserted into my spine in order to correct a seventy-five-degree curvature.
I was twelve. I'm forty-seven now.
The surgery to correct the curvature of my spine was necessary. Yet now it is a main reason why I suffer from chronic nerve pain.
My official diagnosis is " Failed Back Surgery Syndrome" While my scoliosis surgeries did not fail in the technical sense {My back is somewhat straight now}, the problems I deal with now are caused by the implants in my spine.
For close to four years now, I've been battling the health care system to get a pain-and drug-free solution to my problem. The pandemic, and a need to change pain clinics {that mess is another story for another day}
Let me say one thing: I DO NOT LIKE DRUGS. As part of the hunt for a solution, I've tried physical therapy, yoga, CBD rubs {which actually does help temporarily} and a TENS unit.
None of this works for nerve pain. Imaging of my lower back shows that the nerve roots of my lumbar spine look like frayed rope.
Ouch.
Currently I am taking two very different medications to control the pain.
One is Gabapentin, a medicine that works on the central nervous system via the chemical receptors to the brain. It is not a controlled substance.
On really bad days I take Tramadol, which IS a controlled substance. Due to its potential for abuse, and a family history of alcoholism, I only use this medicine when NEEDED.
I am waiting for a procedure that will {HOPEFULLY} erase the need for me to take copious amounts of drugs. It is called Radiofrequency Ablation. Here is a good article about the procedure.
https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/radiofrequency-ablation-pain-relief
In order for my insurance to qualify me for this procedure, I had to undergo TWO injections of a nerve-blocking medication into my lower back. Yuck.
Thankfully, my messed-up back passed this " test", and I am scheduled for the nerve ablation on October 24. Per insurance, I can only get one side ablated at a time.
Damn.
Thanks, Humana.
I also suffer from a condition called Vasovagal Syncope, which is a fancy word for fainting at triggers. I discovered that was a problem when I went in for a steroid injection at my previous pain clinic and nearly went into cardiac arrest when the nurse stuck an IV in my arm. So, I am not thrilled about TWO IV insertions, but at least I know to tell the nurse to have plenty of IV fluids immediately available.
A tired, hungry , scared and dehydrated Sarahbeth is a recipe for another near-death experience.
Y'all I , am tired of being in pain.
I'm in my late 40s-- with hopefully a long second half of life ahead of me.
If you pray, please pray that this procedure works.
All I want is to feel " whole" again.
Sarahbeth McCarren
Oct 8 2023